Exchanging good practices in e-health care for adults with Parkinson’s and their family caregivers in Europe
▶Summary
By implementing this project, our primary goal was to address several key objectives. Firstly, to share political concerns and emphasize the rights of adults living with Parkinson's across Europe....
▶Objectives
By implementing this project, our primary goal was to address several key objectives. Firstly, to share political concerns and emphasize the rights of adults living with Parkinson's across Europe. Additionally, we sought to enhance qualifications promoting lifelong learning and professional development. Furthermore, we aimed to promote technology, digital content, and best practices as tools to contribute to the well-being and improved quality of life of many individuals, fostering efficient and cost-effective care. We also intended to provide comprehensive training in patient treatment and care for healthcare and social professionals, as well as support for caregivers. Through active cooperation between professionals, patients, and caregivers, we aimed to equip them with the necessary knowledge and skills. Moreover, we aimed to disseminate innovative therapeutic projects and adult training in best practices, thereby supporting professional educators in creating growth opportunities and market relevance for businesses in relation to an aging society. Additionally, our project sought to support the transition of healthcare and assistance systems for patients and address the concept of active aging.
▶Activities
World Parkinson's Day 2022: 5 awareness actions in Madrid, Liége, Athens and Belgrade with approximately 1,872 physical and online attendees. Topics covered from second line treatments to therapeutic innovation. World Parkinson's Day 2023: 4 awareness actions in Madrid, Brussels, Athens and Belgrade with around 4,505 physical and online attendees. Topics covered from future treatments to monitoring tools. Good Practices Guide: A compilation of effective practices in raising awareness, advocating for PD patients, caregiver education, and training healthcare professionals in technology-based treatments. It includes an overview of PD disease and demands of patients, incorporates 10 exemplary projects and input from 13 renowned organizations. Transnational meetings: In Greece, the consortium discussed PD challenges. A keynote by MEP Stelios Kympouropoulos emphasized EU-level action. The Madrid meeting showcased 23 months of work. Over 100 attendees and 1500 online viewers, including public administrators, universities, hospitals and companies, participated in a final event. Project management: Over 24 months the consortium coordinated efforts through 16+ meetings, developing communication, quality, and evaluation plans.
▶Impact
- Community Building tools: WhatsApp group and LinkedIn and Twitter (X) profiles. - Project Website and social media coverage: 1 article in EPALE Platform, 1 Radio Erasmus+ interview, more than 10 press articles. - 10 Evaluation Reports on World Parkinson’s Day activities + final event. - 4 Assessment Reports on 2 Trasnational meetings, 1 intermediate and 1 final follow up. - Research material bringing forward the reflection in the sector: 14 webinars (on World Parkinson’s Day and as a result of a series of transnational Good Practices Meetings and a final event holded) and 1 Good Practices Guide translated into 5 languages (English, Spanish, Greek, Serbian and French). - 1 Communication Plan, 1 Quality Plan, 1 Evaluation Plan, 1 Exploitation and Sustainability Strategy. - 10 presentations on Good Practices and overview of the project. - 11 events by WPD 2022 and 2023 in 5 countries. - 1 final event action. Outcomes: - Partnerships and cross-cultural cooperations: Parkinson’s trial finder; AMCL and Vlaamse Parkinson Liga associations, ATEZOT and PRONOO services, Horizon 2020 projects (TeNDER and PROCare4Life) and SUPER Erasmus+ project. - Exchanges of knowledge in PD, in political demands, in resources... - Experience gained.