PreNat HUB - Communauté collaborative et éducative autour d’une thématique prioritaire : la prématurité

PreNatHUB aimed to associate the use of digital technology with the construction of a dynamic response to a social problem : in our case, prematurity. IFRASS, a training organization for social a...

PreNatHUB had three major objectives: 1. demonstrate how digital resources and tools can support societal issues with high stakes, and support required changes in habits 2. establish communities of interest who can dialogue with each other on the issue of prematurity in order to share experiences, knowledge and practices and co-construct shareable resources. 3. produce training content in order to share knowledge, strengthen information and awareness in the form of webinars or MOOCs. The challenge was to define the framework for setting up an interactive network as an ecosystem where participants alternate the positions of knowing and learning and where other partners could be brought together as the process progressed. dissemination of activities and results. PNH should also allow us to test how digital technologies could contribute to responding to the challenges of a key theme and to be able to model all of the responses and resources co-created with stakeholders.

The main activities of PreNatHUB are described as follows: - setting up groups of participants in multidisciplinary and collaborative communities around prematurity and its issues making it possible to collect the words of users and contribute to building appropriate responses - organization of information and training sessions in the form of webinars, workshops and conferences allowing awareness-raising and the exchange of practices and experiences and documentary resources by country - development of a set of digital supports to facilitate these links and networks and check what best corresponded to the needs - identification of project experiences, necessary adjustments and recommendations allowing future project leaders to transfer this type of activity to other themes - development of a knowledge base (for any professional or family) based on a set of questionnaires and a set of video resources making it possible to understand the issues of prematurity, the collection of experiences and access to expert resources

The results were consistent with the objectives both in terms of dedicated and collaborative networks (experts, associations, professionals and families) as well as resources and tools contributing to awareness and connection around prematurity: - listings and networks around the issues of prematurity in three main communities: social work, users (women, parents, siblings) and care but opening widely to the educational and training community - free and open-source PreNatHUB training made available for professionals and for anyone wishing to acquire the appropriate knowledge to better understand and identify risks throughout the - development of premature children and thus contribute to better support of families - a MOOC restoring the experience of the project, the issues of prematurity from birth to various stages of development and finally the PNH training in full - WEB platforms for communities - a set of videos from partners and aggregated on a YouTube channel (PreNatHUB-erasmus) providing numerous testimonies/interviews and webinars, accessible in many languages, reinforcing the animation of the networks and their sustainability.